Tag Archives: special needs

Light and Shade

IMG_1036I haven’t written anything for a while – too exhausted and unsure what to say. Jo is still at home but thinking seriously about going back to school tomorrow. It is a friend’s birthday, and she evidently feels that she is missing out on a good deal of social life. She can get quite disturbed at home and is very isolated. A couple of days ago Jo left empty sheet of paracetamol tablets ostentatiously on the kitchen table. I had no idea whether Jo had taken one for a headache, or the whole packet. We assumed that a serious suicide attempt would be more secretive, and she has long had a habit of self-medicating, as well as of threatening to kill herself, so I’m afraid we didn’t take all that much notice. I did mention this incident to the art therapist who came this morning, and he said he would have to report it. I also mentioned it to the woman from the LEA who phoned up to do a social assessment for Jo as part of the EHCP. She too was very concerned – although I assured her that Jo’s CAMHS counsellor was aware of her self-harming and state of mind. CAMHS can’t do much about it if Jo won’t engage with the service – I went on my own to her last appointment, as Jo wouldn’t leave the house. Jo wouldn’t engage with therapy at home either, barricading herself in her room when a lovely young woman came to do some drama with her. Jo has always engaged in risky behaviours, and our attitude since she was small was to ask ‘Is it life-threatening’? If the answer was ‘Probably not’ we would let her get on with whatever it was she was doing as supervising her was such extraordinarily hard work.

We had a good family day out visiting relatives a couple of weeks ago. The children are normally reluctant to join in our annual get-together and there have been occasions in previous years when having got them there they refused to get out of the car. Billy was the worst offender, but Jo would keep him company. This time his girlfriend Jane was invited along, which made all the difference. Billy behaved well in front of Jane, and Jane included Jo, making friends with her. Sunday morning we were discussing the success of the previous day when three CID officers turned up at the house. At first Billy assumeUnknownd that they had come to take Jo back to school, and told her as much. They were in plain clothes and an unmarked car, but unmistakably the police rather than Jehovah’s Witnesses (we had them today and they are always in twos rather than threes). To cut a long story short, Billy is in trouble over an incident that happened about fifteen months ago. The police had traced his address through his mobile phone number, which he had exchanged with someone else involved. They had a search warrant and took away Billy’s laptop and phone. He was shaken, as we all were, but resigned. He also had to tell Jane at least some of what it was about as she was in the house at the time and he could hardly conceal that he was in trouble. Billy’s biggest worry seemed to be the effect on Jane and their relationship. The police also made it clear that if he didn’t present himself at a police station for interview they would issue warrant for his arrest.

I had two days to try to find a suitable criminal solicitor, and last Tuesday evening Tony came from work and I picked him and Billy up, and we made our way to the police station where we met the solicitor. She didn’t think that it would be in the public interest to prosecute, but the investigations will take some time and he has evidently been engaged in risky, and often criminal, behaviour for some time. Although we were all in a state of shock, there was also a sense of relief that things were coming to the surface, especially as Billy is still a minor (under 18) and there is an opportunity to address the underlying issues when the legal process has run its course. Prosecution is a real possibility, especially if the police find more incriminating evidence on Billy’s laptop, which they hadn’t had time to go through at that point. Billy did a good job of explaining himself but it was far from evident to us that he understood what he had done, or why it was wrong. He clearly knew that he was in trouble, but seems to live in a world with different values. So far at least Jane and her family have stood by Billy – he was at their house last weekend. Its hard to know quite what she sees in him, although he can undoubtedly be kind and caring, and they seem very much in love. We will make the most of enjoying the positive influence Jane seems to have on him while it lasts.

On Thursday as well as attending Jo’s CAMHS appointment without her, I bought a cheap laptop for Billy so that he can do his college work, and Nokia pay-as-you-go phone so that we can contact him, and he can stay in touch with his friends and tutor. I also had to go to the Job Centre with his birth certificate, which the DWP needed for some reason. They haven’t paid Billy’s benefits this month or last, which makes it hard to pay his rent, but I haven’t had the time and energy to find out what’s going on as yet. As I walked through the front door I could see that all was not well. Although our house is messy and too full of stuff, most of the stuff seemed to be on the floor, along with smashed remote controls and debris. The first thing I saw entering the drawing room was damage to the plasterwork – and I later found a smashed up chicken coup on the decking. I was pretty annoyed, having spent another day running round after the kids while they smashed the place up. Billy had retreated to his room and Jo had calmed down by then. He knows exactly how to push Jo’s buttons by being incredibly rude to her, and she reacts but damaging things to deflect her aggression away from Billy. After the smashing episode she asked him how he would feel if Jane could see him, which touched a very raw nerve. He was sobbing but looked murderous. Tony remonstrated with Billy, who wanted us to simply blame Jo for the damage (and to call the police). His stated ambition has always been to make her so naughty that we get rid of her. He wasn’t in a mood to listen to Tony, but hopefully got the message that provoking Jo to get a result is just not on. It is a pattern repeated endlessly since they were very small, but no joke with two large teenagers.

Sprouting_nut_by_EaglewolfTony and I had a few sleepless nights feeling that we had reached another crisis, or at least turning point. Having both children at home with two parents is tough, but with one parent impossible. We agreed that Billy could only come home if he or Jo had a friend staying so that there is someone to act as a moderating influence on Billy’s behaviour (although this is not always effective) and both parents are at home. Logistically this might be difficult but we have been here before. It means cancelling other plans and commitments, which is annoying but can’t be helped. On the plus side, Billy did apparently attend a music therapy session that took place in college today. I just hope he finds a way to work through some of his anxieties and feelings in a way that enables some positive changes in his life. One of the images that came up in the art therapy this morning was that of a nut, like a conker, hard and brown but breaking open with the green shoots of new life. That is what I would wish for each of us.

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Falling apart or falling into place?

When you are in the middle of a situation it is hard to know which of these two realities one is living. Are things falling apart or falling into place? I guess it always feels as if unplanned changes represent things falling apart, even if experience tells one that such times can be creative. They generate change. Jo is like a chrysalis tucked up in her duvet, waiting to emerge as a butterfly. I suspect that this could be a long and painful process, and unlike the caterpillchrysalis to butterflyar who can just wait until the sun comes out in the Spring, Jo will actually have to find the resources to be proactive at some point. The crux of it is that she won’t return to school. It has been an increasing struggle this year, not that it was ever easy getting her there. She has now missed so much of her GCSE work that she has little chance of catching up, which is another disincentive to return. The main problem is a developing social phobia, not wanting to be looked at. Unfortunately our lovely daughter will only continue to become more biologically male, unless and until she can get her head around attending the University College Hospital endocrine clinic and going on hormone blockers. The problem is therefore not going to disappear with the Spring sunshine.

We tried and failed three times to get a Statement of Educational Needs for Jo, so will now need to start again with the new Education, Health and Care needs assessment process. In theory it is more holistic and will look at social and emotional factors, as well has Jo’s base- line cognitive ability. The SEN Statement process was also supposed to take broader needs into account, but in practice these were summarily dismissed. Jo might find the courage to carry on with her education in a much smaller residential setting, with therapeutic support available and a better understanding from all those involved of her complex mix of needs, her strengths and weaknesses. If she was in a wheelchair or was on the autistic spectrum I suspect her needs would be better identified and catered for, although I know that it is increasingly hard for all children and young people with any disability or mental health issue to get support and to find a place in society. The transgender process is just another part of Jo’s complicated but no doubt wonderful jigsaw. I can’t wait to see the finished picture (in this life or from the next!). We were planning a meeting at the school, with social work support and the Virtual School involved, but there seems little point if Jo doesn’t return there. It is hard to know how to plan or move ahead. It is also painful scraping around trying to find school fees on a month-by-month basis, with repairs and other things jobs on permanent hold, when the child is actually at home in bed.

Lone hero parent

I attended a retreat/conference in Italy and was, most unusually, away for four nights, leaving Tony to cope with both children alone at the weekend. This is not something we aim to do if we can help it. Billy arrived back from college with a friend. The friend had been before when they camped in the woods next to the house. I gather that all three children had some fun playing with B B guns (not something I like as they shoot hard plastic pellets, which I’m always afraid the chickens or other animals could eat). Jo was included, and from the range of pellets around the house and garden they obviously had a wide-ranging battle as well as some target practice. They also seem to have consumed plenty of fish and chips as the food left in the fridge was largely untouched and the debris extensive. Unfortunately, as so often happens, things took a turn for the worse on Sunday. Tony suspects that Billy was smoking cannabis, or something else that he shouldn’t, which makes him extremely aggressive. Apparently he physically attacked Jo in her room, and threw food or drink all over the wall by her bed (the evidence of which will remain until we can redecorate the room at some time in the future). Billy was extremely rude and verbally aggressive to Tony, who managed not to react – much to his friend’s embarrassment. I suspect that Billy’s friends, who all seem a nice lot, are just not used to seeing or hearing someone be so aggressive and rude within an apparently civilised family setting.  Billy is not going to find it easy to keep friends, or be welcome in other people’s homes, if he can’t get on top of this behaviour. I had several requests for money while away, and as usual the money for his train fare seems to have been diverted, presumably for drugs. This is another situation in which it is hard to know how to react.

imagesOne decision I did make was not to clean and tidy Billy’s room. I went up on Monday morning intending to do it, but partly through exhaustion, partly annoyance, but also I hope some wisdom, decided that apart from taking a plate and fork down to the kitchen I would leave it as it was. My hope is that if I stop doing things for Billy he will begin to do them for himself. He won’t always have me around to tidy up after him. If I don’t do things for Billy he generally gets very cross with me and sees it as a lack of love and care, which makes him feel very vulnerable. Maybe at some point he will allow me to help him do the clearing for himself. If he felt that he had more control over his environment without relying on others he might be happier. A friend told me that one of the effects of dyspraxia is difficulty not just sequencing, but also generating the action words needed to perform tasks. This makes sense to me as I am aware of telling myself to do jobs one at a time in order to get them done (‘ignore the food and cans and pick up the clothes’, now take aftershave, razors, deodorants etc. back to the bathroom’, ‘get a bag and collect all the tin cans’ and so on). If I need to do this to accomplish a task, I do understand how Billy finds it difficult to even get to the stage of seeing the individual tasks within the whole chaos of his room. What I don’t really understand is why he needs to trash the room so comprehensively within such a short time. One little obsession is removing all his many caps from his cupboard, and hooks on the back of doors, and scatter them over the room, so one of the tasks I usually perform is ‘now find, pick up and put away all the baseball caps’. I have asked him why he does it but he doesn’t have an explanation for this behaviour, other than it is a habit. It sometimes feels as if adoptive parents need to be professional psychologists, rather than just overworked, underpaid, and very tired housekeepers, cooks and drivers.