My last post was about Billy, so now it’s Jo’s turn. Here we have seen progress. After months and years and tens of thousands of pounds in legal fees and specialist reports, Jo was offered a local authority funded place at a Priory specialist 16-25 residential college for young people with Aspergers and similar social disabilities. As there are no specialist colleges for FASD its a best fit. To our amazement Jo managed to go to a trial few days in the summer and made friends, which made the September transition easier. She also did a few days summer work experience in the pottery of a local Camp Hill community craft centre which also gave her confidence. While we can’t say she is happy, she is a professional moaner, the change from being stuck in her room with only online relationships to her current situation is huge. The academic programme has not really got off the ground – she hangs around outside the class apparently too stressed to take part, but wants to be around people and have company. College for Jo is about social relationships, particularly boy friends, and given that her peer group are mostly on the autistic spectrum and socialisation isn’t their strong point, she has done well. It is an enormous advantage that the college have a 24 hour waking staff, so if she is awake at night she can and does go and talk to someone, reducing the likelihood of self harming. We just hope that the local authority will consider her progress sufficient to continue funding – any excuse to cut it will be so tempting to them. There is an annual review next month and rather ominously we had a letter from the LA saying that they had changed her Education Health Care Plan as a result of the review reports received from the college. To have Jo back home in her room at this stage would be heartbreaking.
It’s a while since I wrote a post – too many other things to do, not sure where to start, too exhausted – physically and emotionally. Boxing Day seems like a good time for a quick retrospective look at 2015. Christmas was different this year as Billy opted not to join us. In July we managed finally, after a great deal of effort on my part, to get a referral to a hostel for homeless youngsters in a town about 50 miles from home. His behaviour at home has become increasingly difficult, and he has nothing to do here. He almost but not quite finished his catch-up Sixth Form college year, sabotaging it really as he didn’t finish his courses. Still under qualified for progression to Level 3, the College said back in about April that they wouldn’t keep him on next academic year. We went to a talk about apprenticeships but he clearly wasn’t remotely ready for this. After some searching I found a housing project that also offered music technology Level 2 and Maths, as well as accommodation. Getting a social service referral was ridiculously complex, but we got there in the end. After a shaky start in a grotty little flat with five other lads, all older, which was evidently pretty scary, he was moved to the main building where at least they have CCTV and more people around, as well a a bigger room. There is still no-one on duty at night and the kids are pretty feral, left to their own devices much of the time. Billy has a key worker he sees for an hour a week, when he makes it, but seems to have fallen out of the education and isn’t doing anything else. He has money from disability payments and housing benefit pay the rent. At the moment he isn’t motivated to do much else and has fallen into a gang culture with very little effort. His fascination with guns and knives, inability to control his temper and distain for anyone weaker than himself are worrying to say the least. We picked Billy up today on our way home from relatives, where we spent Christmas, but having opened his presents he is keen to head back to his mates. It is so sad to see him like this. He is nearly 18 and the problems he had at five and ten are all there, and it is very hard to see how he is going to stay out of prison.
The adoption fund provided some therapy for us. It was supposed to be 20 sessions of art for me and Tony, 20 of drama for Jo and 20 of music for Billy. Tony and I have found ours very useful – Billy went a couple of times then wouldn’t turn up and Jo wouldn’t engage at all, locking herself in her room. Part of the ‘work’ we have been doing is letting go of the kids and realising that what we can do for them is increasingly limited.
Having driven for nearly 3 hours today already, Billy just came to ask if there was a train back to the town he’s living in (there isn’t). I will take him back after only about four hours at home as he assures us that it is either than or he will smash up the house. He’s angry with his girlfriend as she went out with her family and another guy. We worry about her ability to cope with someone as needy and dangerous as Billy but so far she sticks with him.